|Blogs||Articles||Organizations||Biography||Jack's Book||Contact Information||Links|
Navigation: SOS Sisson > Traumatic Injury Blog
Jack Sisson's TBI Blog
A hug is duct tape for the soul.
Sunday, April 21, 2013
NIH-funded study to develop measure of quality of life specific to caregivers of persons with TBI
From The George Washington University School of Public Health and Health Services:
Dr. Chiaravalloti receives $526,206 National Institutes of Health grant to study challenges faced by caregivers of persons with TBI
Kessler Foundation is one four sites participating in "Quality of Life in Caregivers of Traumatic Brain Injury: The Development of the TBI-CareQOL", a multi-site 5-year study funded by the National Institutes of Health/National Institute of Nursing Research (1R01NR013658-01). Nancy Chiaravalloti , PhD, co-investigator of the Kessler site, is also project director of the Northern New Jersey Traumatic Brain Injury System and director of TBI Research at Kessler Foundation.
The University of Michigan is the lead center for the study; Noelle Carlozzi, PhD, is principal investigator. The goal is to develop a measure of quality of life that is specific to caregivers of persons with traumatic brain injury (TBI). Although these caregivers have been identified as an underserved population in both civilian and in military life, there is a lack of measures of health-related quality of life (HRQOL) that are specific to these caregivers. "This study will result in a new tool that will help clinicians understand the issues these caregivers face," said John DeLuca, PhD, VP for Research and Training, "and identify the need for additional treatment and resources both the patients with TBI and their families."
This study has 3 phases. In the first phase, caregivers of persons with documented TBI participate in focus groups to discuss issues related to their quality of life. To assess the impact of TBI on quality of life, data are collected from the patient medical records on type of injury, cause of injury, severity of injury, lengths of stay, and possibly associated injuries. During the second phase, caregivers complete a draft measurement tool and the various questions are evaluated for appropriateness and utility, as well as other statistical properties. In the third phase, caregivers who completed the draft assessment tool are interviewed to evaluate their experience.
The TBI-CareQOL is targeted for use in caregivers of both civilian and military TBI. This will be utilized as a primary assessment measure in the congressionally mandated 15-year longitudinal study of caregivers in the military, and is a potential measure for inclusion in the TBI Model System (TBIS).
Link to Medical News at The George Washington University School of Public Health and Health Services.
The costs associated with treatment for TBI victims is nearly impossible to calculate as victims often need treatment for the rest of their life. Further research will only help our understanding of what treatment may cost in the future and how to prevent many of the symptoms associated with TBI.
If mainstream America were truly cognizant of the exhorbitant costs to taxpayers, as well as the long term effects, across multiple generations to medically treat, support and manage a single person with TBI, I believe the following changes would occur, from sheer public outcry:Post a Comment
1. Mandatory helmet laws for all states; vehicular, motorcycle and bicycle. Compliance rates will match the rate of enforcement. Major decrease in TBI will be seen across the board in the very first year of Congressional bill being passed.
2. Mandatory pre-incarceration screening for individuals entering the prison system for any type of brain injury.
3. Mandatory MRI screening of all CDL applicants prior to state licensure.
4. All military service should be screeened for brain injury within 10 days of completion or discharge from active duty, irregardless if a head injury was sustained or not during active duty. Guaranteed, life-long medical care for all active duty veterans with brain injury, regardless of service tenure or terms of discharge.
LinksTBI Film Reviews
TBI Book Reviews
Traumatic Brain Injury Law Blog
SoapBlox/Chicago: Protecting Our Troops
Head Injury Survival Journal
Losing the Physical Self
Tower of Hanoi: Instructions for this popular puzzle can be viewed simply by clicking the Instructions button on that page.
May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 August 2006 September 2006 October 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 January 2009 March 2009 April 2009 December 2009 April 2010 May 2010 June 2010 July 2010 August 2010 September 2010 October 2010 November 2010 January 2011 February 2011 March 2011 April 2011 May 2011 June 2011 July 2011 August 2011 September 2011 October 2011 November 2011 December 2011 January 2012 February 2012 March 2012 April 2012 May 2012 June 2012 October 2012 November 2012 December 2012 January 2013 February 2013 March 2013 April 2013 May 2013 June 2013 October 2013