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From The Parkinson's Action Network:
The National Neurological Diseases Surveillance System Act (S. 425) was introduced in the U.S. Senate on March 1, 2011 by U.S. Senator Mark Udall (D-CO), Senate Co-Chair of the Congressional Caucus on Parkinson’s Disease. Sen. Udall was joined as original co-sponsor of the bill by Sen. Bob Casey (D-PA), Sen. Johnny Isakson (R-GA), Sen. Mike Johanns (R-NE), and Sen. Debbie Stabenow (D-MI). The bill will create, for the first time, separate, permanent, and coordinated Multiple Sclerosis (MS) and Parkinson's Disease national registries at the Centers for Disease Control and Prevention (CDC). The registries will rely upon existing databases including Medicare, Veterans Affairs, state registries, and other databases to determine the incidence and prevalence of MS and Parkinson's disease across America. You can help the Parkinson’s community gain support for this important piece of legislation by contacting your Members of Congress.

Why is this Important to the Parkinson’s Community?
We estimate that more than one million Americans are living with Parkinson’s disease, but that figure is just a rough estimate. This lack of core knowledge inhibits Parkinson’s research, treatments, programs, and services. A national neurological surveillance system at the CDC will provide data on the epidemiology, incidence, and prevalence of this progressive, neurodegenerative disease. Better data will fuel scientific inquiry, and will advance our understanding of how to treat and support the Parkinson’s community.

It is our hope that the National Neurological Diseases Surveillance System will facilitate research that may lead to discovery of breakthrough treatments, and one day, cures for Parkinson’s, MS, and many other neurological diseases.

Bill Summary
The legislation will establish a national data surveillance system that will track and collect data on the epidemiology, incidence, prevalence, and other factors of neurological diseases, including Parkinson’s and MS. More.
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